Population Data Sources
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General Population Surveys and Responsible Agencies |
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Agency |
Survey |
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Epidemiologic Catchment Area (ECA) Program; Diagnostic Interview Schedule (DIS) |
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National Comorbidity Survey (NCS); Composite International Diagnostic Interview (CIDI) |
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National Health Interview Survey (NHIS) |
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National Health Interview Survey on Disability (NHIS-D) |
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Centers for Disease Control (CDC) |
Behavioral Risk Factor Surveillance Survey (BRFSS) |
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Office of Applied Studies (OAS), Substance Abuse and Mental Health Services Administration (SAMHSA) |
National Household Survey on Drug Abuse (NHSDA) |
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Centers for Disease Control |
Youth Risk Behavior Surveillance Survey (YRBSS) |
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Centers for Disease Control |
Fatality Analysis Report System (FARS) |
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U.S. Census |
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Agency for Health Research & Quality (AHQR) and National Center for Health Statistics |
Medical Expenditure Panel Survey (MEPS) |
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Agency for Health Research & Quality |
Health Care Cost and Utilization Project (HCUP-3) |
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Utilization, Need, Outcomes and Costs for Child and Adolescent Populations (UNOCCAP)—this survey was developed, but never fielded |
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Data Elements for the Population Data Set
Community demographics
Community characteristics that would bear on risk for disorders
Health and mental health characteristics
Access to and use of services
Treatment and prevention services
Community support
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Data Elements for the Enrollment Data Set |
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Domain |
Data Elements |
Definition |
Ready for Prototype |
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Unique Identifiers |
Sponsor ID |
Refers to a unique identification number for the entity who is funding the coverage. This could include a private employer, government, self-pay, union, etc. |
No |
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Plan ID |
A unique identification number for the entity that has responsibility for paying the claim. The plan and sponsor may be the same organization. |
No |
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Enrollee Identifier |
Unique Identification number for the members of a plan. The enrollee and dependents would each have a unique ID. |
No |
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Primary Health Care Provider ID |
Member’s physician selected at time of enrollment. Unique ID of Primary Care Physician. |
No |
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Member |
Eligibility Status |
Identifies whether the member is on or eligible for Supplemental Security Income (SSI) or Social Security Disability Insurance (SSDI). |
Yes |
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Date of Birth |
Member’s birthday. |
Yes |
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Marital Status |
The marital status of the member at time of enrollment (to be updated) using categories compatible with U.S. Census. |
Yes |
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Gender |
Sex of member. |
Yes |
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Race |
Origins of the member using U.S. census categories. |
Yes |
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Hispanic Origin |
Origins of the member using U.S. census categories. |
Yes |
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Member Continued |
Residence |
Zip code (Plan would need full address). |
Yes |
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Living Arrangement |
The member’s usual living arrangement indicating whether they live alone, with relatives or non-related persons. |
Yes |
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Residential Arrangement |
The member’s usual residential arrangement which includes on the street or in a shelter, private residence, jail or correctional facility, other residential arrangement or other institutional setting. |
Yes |
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Years of Schooling |
Educational level attained at time of admission. |
Yes |
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Employment |
Status at time of enrollment using U.S. Census categories. |
Yes |
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Occupational Code |
Most recent occupation of member. |
Yes |
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Primary Language |
Member identifies language most frequently used in conversation. |
No |
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Plan |
Date Enrollment Begins |
The date on which the member becomes eligible for coverage. |
Yes |
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Date Enrollment Ends |
The date on which a member’s eligibility for coverage is terminated. |
Yes |
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Health Status |
Self Reported Health Status |
Global measure of health status at time of enrollment using the National Health Interview Survey (five category rating from excellent to poor). |
Yes |
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Health Status Continued |
Functional Status |
Global rating of the member’s overall abilities to care for self. |
No |
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Disenrollment Reason |
Primary reason for member discontinuing coverage. |
No |
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Cause of Death |
Cause of death to include suicide, accident or other (to be determined). |
No |
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Data Elements for Encounter Data Set |
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Domain |
Data Element |
Definition |
Ready for Prototype |
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Unique Identifiers |
Plan Identifier |
A unique identification number for the entity that has responsibility for paying the claim. The plan and sponsor may be the same organization. |
No |
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Enrollee Identifier |
The unique identification number for the members of a plan. The enrollee and dependents would each have a unique ID. |
No |
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Provider Specialty Type |
Identification of the provider’s professional classification or specialty (e.g., physician, psychiatrist, psychologist, master level therapist, peer counselor). |
No |
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Facility Identifier |
If services are rendered in an organization (e.g., the provider is employed by an organization that holds the contract with the plan, hospital, etc.), this is a unique ID that identifies the facility. |
No |
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Service |
Claim Identification or Transaction Number |
The unique identification number assigned to the transaction. |
Yes |
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Date of Service |
The date the service is delivered to member. |
Yes |
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Date Service Begins |
The date the service started (e.g., hospital admission date, partial care start date, first outpatient visit in an episode of care). |
Yes |
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Service Continued |
Date Service Ends |
The date the service terminated (e.g., hospital discharge date, partial care stop date, last outpatient visit in an episode of care). |
Yes |
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Admission Date (Inpatient) |
The start date for inpatient services. |
Yes |
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Discharge Date (Inpatient) |
The discharge date for inpatient services. |
Yes |
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Duration of Service |
The actual time in hours and minutes provider was involved in the encounter. |
Yes |
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Type of Service |
The codes for services delivered by the provider. This might include a subset of codes that describe treatment in detail (e.g. individual supportive psychotherapy, cognitive-behavioral group therapy). |
Partial |
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Provider Identifier |
The code that uniquely identifies the service provider for this encounter (may be more than one). |
No |
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Service Location |
The place of service delivery. |
Partial |
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Medications Prescribed |
The data will include prescription(s), unit/dose, refill number using coding recommended in HIPAA standards: National Council for Prescription Drug Programs (NCPDP). |
Partial |
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Disposition/ Discharge Status |
The chief reason for termination or discharge and the recommendation of the provider at the end of the encounter (e.g., further treatment needed). |
Partial |
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Discontinuation Date |
The date the provider terminates the client from treatment. |
Yes |
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Member |
Principal Diagnosis |
The diagnosis chiefly responsible for admission of the member (inpatient) or for seeking the service (outpatient). |
Partial |
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Primary Diagnosis |
The diagnosis that is responsible for the majority of the care given to the member or the resources used in the care (inpatient and outpatient). Primary and principal diagnosis may often be identical. |
Partial |
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Other Diagnosis |
Other diagnoses that coexist or develop subsequently that may affect the treatment received or length of stay. NCVHS recommends coding for onset prior to admission (yes or no). |
Partial |
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Legal Status |
The member’s legal status with regard to the encounter (e.g., involuntary civil or criminal commitment, voluntary admission). |
Yes |
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Cost |
Total Charge |
The total charges for the encounter (this should reflect the total cost of the encounter). |
Yes |
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Member Co-pay |
The amount of payment covered by the member. |
Yes |
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Payment Method |
Method of payments (pmpm, case rate, fee for service, etc.) |
Yes |
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Plan Pay |
The amount of payment expected to be covered by the plan for fee for service charges. |
Yes |
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Data Elements for the Financial Data Set |
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Domain |
Data Elements |
Definition |
Ready for Prototype |
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Unique Identifiers |
Payer or sponsor identifier |
Unique identification number for the entity who is funding (providing payment for) the coverage. This could include a private employer, government (Medicare, Medicaid), self-pay, union, etc. |
No |
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Payee identifier |
Unique identification number for the entity who receives payment for the service delivered. |
No |
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Organization identifier(s) |
Unique identification numbers for all entities involved in the financial transactions |
No |
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Individual covered by payment identifier |
Unique identification number for the consumer. |
Yes |
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Person-level Data Elements |
Consumer copayment |
An out-of-pocket payment made by or charged to the consumer at the time of visit or discharge. |
Yes* |
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Consumer payment towards deductible |
Total copayments made that are counted toward a deductible. Once a deductible amount is met, copayments generally decline or are zero. |
Yes* |
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Third party payment |
Payment made by an insurer or other payer (e.g., Medicaid). |
Yes* |
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*dollar amount |
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Person-level Data Elements Continued |
Method of third party payment (if any) |
Describes the financial incentives: fee-for-service, salary, capitation, case rate, DRG, per diem are the principal examples. |
No |
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Compensation method |
This is different from method of third party payment if the clinician does not contract directly with the third party – e.g., is in a group practice. |
Yes |
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Date of payment |
Date on which claim or prospective payment is made. |
Yes |
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Time period covered by payment (e.g., capitation payments often cover one month) |
Dates over which payment is intended to cover average costs (if fee-for-service, then point in time). |
Yes |
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Organization-level Data Elements |
Current assets |
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No |
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Organization-level Data Elements, Continued |
Non-current assets |
Unlike current assets, non-current assets are not expected to be converted into cash within a year.
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No |
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Total assets |
The total of all current and non-current assets as a dollar value. |
No |
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Current liabilities |
A dollar value for the debts that require payment within a year (wages payable, accounts payable, interest payable, etc.) |
No |
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Non-current liabilities |
A dollar value for the long-term obligations to be paid beyond a year (mortgages, bonds payable, notes payable, etc.) |
No |
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Organization-level Data Elements, Continued |
Total liabilities |
The total of current and non-current liabilities as a dollar value. |
No |
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Operating revenue and support: first and third-party revenue by program element |
A dollar figure for each category should be provided for each program element operated by the organization.
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No |
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Operating revenue and support: all other sources |
A dollar figure for all categories should be provided for each program element operated by the organization.
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No |
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Organization-level Data Elements Continued |
Non-operating revenue |
A dollar amount for the income the organization receives that is not related to the delivery of mental health services (investments such as interest, business income, capital gains, gifts and contributions of cash or liquid assets, bequests and charitable contributions, and research support). |
No |
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Total revenue and support |
The sum of operating and non-operating revenue and support as a dollar value. |
No |
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In-kind contributions and volunteers |
The estimated dollar value of benefits received by an organization where no funds are exchanged (examples include the fair market value minus actual rent for a building or value of staff assigned to the organization by other entities who are on the payroll of those entities). |
No |
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Operating expenses by program element |
Expenses related to the delivery of mental health services broken out by program element. Operating expenses include rent, salaries, supplies, insurance, and utilities. |
No |
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Non-operating expenses |
A dollar amount for the expenses of the organization that is not related to the delivery of mental health services (e.g. interest on loans). |
No |
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Organization-level Data Elements Continued |
Total expenses |
The sum of operating and non-operating expenses as a dollar value. |
No |
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Data Elements for the Human Resources Data Set |
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Data Element |
Definition |
Ready for Prototype |
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Social Security Number * |
Social Security Number |
Yes |
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Unique Provider Identification Number * |
Unique Provider Identification Number (UPIN) assigned by the Health Care Financing Agency for use in submitting Medicare and Medicaid bills |
No |
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Staff Unique Identifier + |
For all staff. A unique identifier that corresponds to a staff member independent of the organization reporting. May be the same as the Provider ID. |
No |
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Date of Birth * + |
Staff member’s date of birth (mm/dd/yyyy) |
Yes |
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Sex * + |
Staff member’s gender (male/female) |
Yes |
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Race and Ethnicity * + |
The US Census Definition (all that apply)
If Hispanic:
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Yes |
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Primary Professional Identification * + |
Self-selected category that best reflects the major discipline, training, or profession for which staff member has been trained or hired (rank all that apply)
Leginski et al., 1989 include: mental health worker with less than a bachelor degree; schoolteacher; public, hospital, or business management/administration; speech therapist; dietician; pharmacist or assistant; dentist or dental assistant; other physical health professional or assistant; medical records administrator or technician; other worker (support, maintenance, administration). |
Partial |
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Employment Primary Professional Discipline * |
Whether staff member is employed in the primary professional discipline ranked #1 in each of primary setting and secondary setting |
Yes |
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Degrees Earned * + |
Although question formats may vary, the minimum data elements should include type of degree, field of degree, year of receipt, and the institution awarding the degree.
Pion et al., 1998 include the field of the degree (e.g., clinical psychology, social work or sociology), year degree was degree awarded, and name of the institution awarding the degree (Name, City, State/Province, Country, Name of Dpt) Leginski et al., 1989 include education level: less than high school diploma or GED, high school diploma or GED, some college, associate degree, bachelor degree |
Partial |
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Credentials for Practice * + |
Whether staff member is currently licensed, registered, or certified to practice in his/her profession by one or more of the 50 states, the District of Columbia, or US territories. Pion et al., 1998 asks respondents to indicate the specialties of the current licensure, registration, or certification, the states in which they are valid (e.g., clinical psychology, school counseling, or occupational therapy), to be specific, and not to use initials or abbreviations:
Pion et al., 1998 also asks respondents to indicate any additional practice-related credentials and the full name of the credentialing body (e.g., Diplomate in Clinical Psychology by the American Board of Professional Psychology). |
Partial |
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Employment Status * + |
Staff member’s current employment status (check one):
Leginski et al., 1989 suggest, in addition, the following:
Pion et al., 1998 also ask: If not employed: is respondent currently looking for work? (yes/no) If employed: what are the number of hours per week respondent typically works for pay? [If time period is atypical due to illness, vacation, or other circumstances, typical hours worked per week are reported] If employed: is respondent currently seeking employment in addition to current job or position? (yes/no) |
Yes |
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Number of Separate Paid Positions * |
Number of different employment positions currently held (e.g., if respondent works part-time in a drug abuse clinic and also has a part-time independent practice, this should be reported as two positions. If respondent has two different job titles such as Associate Professor and Director of the Student Counseling Center, these are also two separate positions.) |
Yes |
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Employment Setting(s) * |
From the list below, the category that best describes the employment setting of the respondent’s primary and secondary paid positions:
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Yes |
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Work Activities * |
Total number of hours that respondent worked in primary paid position, and total number of hours worked in all paid positions combined. For the past week, number of hours spent in specific work activities in primary paid position and in all of positions combined:
Typical work week? (yes/no)
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Yes |
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Zip Code(s) Service Settings* |
First 5 digits of zip code of residence and primary and secondary paid positions as well as for services provided in other settings |
Yes |
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Relationship to Employer(s) * |
Financial arrangement to employer(s) for primary and secondary positions:
Percentage from the following payment arrangements:
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Involvement in Managed Care Arrangements * |
Number of affiliations respondent has with each of the following types of managed care arrangements (in any setting); whether any income is received from each of these arrangements. Includes both being a salaried provider in a centralized health maintenance organization (HMO) and contracting with a behavioral healthcare firm that supplies referrals under a reduced fee for service arrangement and also carries out utilization review of cases:
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Yes |
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Source(s) of Payment for Provision of Direct Services * |
Funding sources that consumers may use to pay for direct services (all that apply) and percentage of reimbursement from each source:
Other (specify) |
Yes |
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Provision of Direct Services to Special Populations * |
Total number of consumers treated by respondent during most recent typical week of practice. Percentage of consumers with certain characteristics to whom respondent provided direct services during the last typical week:
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Yes |
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Provision of Direct Services to Special Populations Continued |
Using DSM-IV diagnostic categories, provision of services during the most recent typical week to consumers with any of the following disorders (all that apply):
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Languages Other than English *+ |
Whether staff member can provide direct services to consumers in any language other than English (yes/no/specify) Pion et al., 1998 includes the percentage of consumers to whom respondent provided direct services that required use of languages other than English in the past time period |
Yes |
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Staff Separation Date + |
If applicable, the month during which the relationship or affiliation between the individual and the organization was terminated |
Yes |
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Country of Highest Degree |
Name of Country |
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Private Practice Maintained |
The individual maintains a private practice in this profession (yes/no/not applicable). |
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University or college Affiliation |
The individual is affiliated with a university or college to teach or conduct research at that institution (yes/no/not applicable). |
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Participation in Job-related or Career Development Training |
The individual has participated in any of the following types of training intended to improve job performance, acquire additional skills, or satisfy a continuing education expectation:
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Income from Organization |
Actual or estimated income for annual salary or reimbursement received from this organization, including overtime and bonuses, and excluding fringe benefits. |
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Fringe Benefits Value |
Estimated percentage of the person’s salary from the organization that the fringe benefits represent. These include contributions to retirement funds, health insurance, or life insurance payments, education benefits, participation in profit sharing, shares of stock, etc. |
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Year of Degree |
A 4-digit code for year in which the highest degree was granted. |
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Primary Job Function |
The assigned category that best describes the major function the organization expects the person to perform on a day-to-day basis:
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Experience |
Prior to current employment or affiliation with the organization, total number of years worked in mental health. (If 6 months or less, round down; if more than 6 months, round up.) |
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Sources: Mental Health Statistics Improvement Program, Draft for FN-11 |
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Data Elements for the Organization Data Set |
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Data Element |
Definition |
Ready for Prototype |
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Organization Identifier |
Federal ID Number or National Provider System ID Number |
No |
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Organization Location |
P.O. Box number or street number and name, city or town, State, zip-code |
Yes |
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Clinician Identifier (link to human resources data set) |
Federal ID Number or National Provider System ID Number |
No |
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Clinician Location (link to human resources data set) |
P.O. Box number or street number and name, city or town, State, zip-code |
Yes |
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Type of Facility |
The category that best characterizes its general type:
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Partial |
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Name of Director |
Last name, first name, middle initial, degree. The director of the organization is generally the individual regarded as accountable for the performance of the organization. |
Yes |
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Telephone Number of the Director |
Area code, 7-digit number, extension |
Yes |
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Locations of Directly Operated Service Sites and Program Elements |
The address of each site directly operated by the organization and an indication of its program elements. |
Yes |
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Type of Ownership or Control |
For profit (individual, partnership or corporation, state-local government, state government, county or city government, district/regional authority) Not-for-profit (religious organizations, Federal government, Other |
Yes |
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University or College Affiliation |
Various affiliations exist with universities or colleges:
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Yes |
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Total Revenue and Support (link to financial data set) |
Operating revenue and support: first- and third-party revenue (includes client fee payments, insurance payments, Medicare, Medicaid) Operating revenue and support: all other sources (includes grants, matches, allocations, appropriations, purchase-of-service agreements, service contracts, etc., from State, Federal, municipal, and other sources) Non-operating revenue and support (includes revenue and support not related to the delivery of mental health services such as gifts, capital gains, interest, research grants, etc.) Total revenue and support |
No |
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Number of Hours of Operation Scheduled Per Week |
Number, rounded to nearest whole hour, usually scheduled each week. |
Yes |
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Relation to the State Mental Health Agency |
The relationship the provider has with the state regarding operation and funding. Operated by:
Receives funds:
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No |
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Admissions |
Total number of admissions of clients for the reporting year. |
Yes |
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Discontinuations |
Total number of clients discharged or otherwise leaving the rolls of the organization during the reported year. |
Yes |
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Number of Hot-Line Phone Calls |
Number of phone calls received by a dedicated telephone line, which is used as a crisis hotline, for emergency counseling, or referral resources for callers with mental health problems, during the reporting year. |
Yes |
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Total Full-Time Equivalents by Type of Service |
Total number of staff hours attributed to each type of service/program element for the reporting year. |
Partial |
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Number of Consumers on Rolls by Type of Service (link to encounter data set) |
Total number of consumers on the rolls or census of each type of service directly operated by the organization at the end of the reporting year. |
Partial |
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Number of Beds Set Up and Staffed by Type of Service |
The number of beds set up and staffed by type of service at the end of the reporting year. |
Partial |
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Number of Consumers Days or Units Provided By Type of Service (link to encounter data set) |
The number of consumer days provided by types of service during the reporting year. |
Partial |
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Types of Services Provided |
Intake, Diagnostic, and Screening Services
Treatment Services
Rehabilitation Services
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Yes |
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Types of Services Provided, Continued |
Support Services
Program for Assertive Community Trial (PACI) or Continuous Treatment Team Program (CTTP) |
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Indicators and Domains for the Performance Indicator and Report Card Data Set
Access
Quality/Appropriateness
Outcomes
Structure/Plan management
Early intervention/Prevention
Indicators for the Outcomes Data Set (from the 16-state indicator study)
Next steps for Quality Tools
Next steps for Clinical Guidelines
Next Steps for System Guidelines